Great news

I haven't blogged for a while now, as you've probably noticed. This is mostly because of how much better I've been feeling. The sleeping isn't under control but other energy levels continue to improve, and my weight is verging back on my normal skinny self rather than gaunt-and-ill me from last month.

I had a great meeting with my specialist this morning. Firstly and most importantly he reassured me hugely about the statistics for transplants. Apparently even pessimistically my chances of living beyond 10 years after the transplant are above 85%, and probably better. Also he said that the general health-risks pre-transplant and post-transplant risks are at a pretty similar level, so there's no particular need to rush into the operation itself. He's seeing me in 2 and 4 months time. At the second meeting we will decide whether I should still remain on the transplant waiting list. If I stay as I am now, or better, then we'll probably go for coming off the list, but he's happy to just wait and see for the moment.

Other good news is that he thinks I can probably come off daily antibiotics shortly. That will be fantastic - can't wait for my poor immune and digestive systems to have a bit of a breather!

So after a really enjoyable new year, some more really enjoyable and quite full-on dance training, and having just bought a nice new car (well, nice second-hand car) with lots of gismos in it, I'm feeling pretty positive.

The last hurdle before near-normality is this sleep nuisance. I'm going to try some dear old phenegan (stuff they give to kids to help them sleep sometimes), on the recommendation of my consultant, and hopefully that'll tip the balance so that I can get to sleep at a normal time and wake up feeling relatively refreshed at a reasonable time in the morning.

If so, then watch out pupils of Camden, I'll be coming back to haunt you, I hope!